Warm pearls slide down my breast
my needing, kneading, needy little one.
Warm pearls slide down my breast
my needing, kneading, needy little one.
My daughter is finally big enough to fit into the cloth diapers we have for her. I have to say I really have the perfect baby for cloth diapers as she is not a prolific pooper. In fact, it is more of an every other day or once a day situation with her. However, this week, the week we choose to try cloth diapering, something seems to have changed.
The universe, my daughter’s adorable little butt, and 3 insane bowl movements later…I am a little less excited than I was 24 hours ago.
The look on her face, as I quickly snapped a picture of her, after the first ill fated diapering attempt…the look on her face says it all….
….She knew before I did.
One of the many benefits of winter storm Jonas was the fact that my husband was home for an extended stay. With him there, I got to cook, clean, shower, relax, and watch tv. He always makes sure I relax, which both drives me crazy and fills my heart with his love and care.
Tapenade is one of mine and my husband’s favorite snacks and right now I am always looking for a high protein snack to help keep up with nursing. Tapenade is a dip that is made of olives, nuts, herbs, garlic, capers, and a sweet element like a roasted red pepper, date, etc. All the ingredients are minced or pureed to create this delicious, high protein snack. I strapped Arden into the baby carrier and away we went.
Disclaimer** I am not a doctor. This is just my story of how I managed my disease during pregnancy with the help of a plan developed specifically for me with a LLMD. This should not be used as protocol for anyone else; I am sharing it to share the hope of a Lyme FREE child!
MTHFR Gene Mutation is SIGNIFICANT to pregnancy as regular Folic Acid can cause embolisms in women with this gene mutation. It is incredibly common, especially in those with chronic illnesses. Wellness Mama, does a great job explaining this mutation, its significance, treatment, etc. at her blog, here.
I was prescribed several more supplements but these were the only ones I could keep down. I am guessing because they were primarily soluble.
These were a daily (normally 2-4 times daily) occurrence. For me, my flares appear in the form of simultaneous projectile vomiting and diarrhea, muscle spasms, intense anxiety, muscle weakness, and migraines. Coupling this with morning sickness made it almost impossible to eat food, take meds, or function. This is why I lost over 50lbs through out the course of my pregnancy.
After she was born, the nurse and midwife collected placenta samples as well as cord blood samples. These were sent to IGeneX Lab . The test kit had been previously ordered through my LLMD and I kept it on hand with me throughout the whole pregnancy. Originally I had been told to expect 6-8 weeks for an answer but 22 DAYS after she was born, I got a call at 3 minutes till noon telling me that my sweet baby girl was LYME FREE! It was the second best day of my life.
I share this because I know the fear I had when I found out what Lyme could mean for my dreams of becoming a mother. I searched high and low for successful pregnancies. I was desperate for info, I was desperate for a child, I was desperate for hope. Please feel free to reach out with questions, share your own stories, etc. Understand as new mother, I may not be the quickest in getting back to you. But the hope, there is hope.
My Lyme free daughter will be 15 weeks old tomorrow and will be 15 weeks since I experienced 4 blood transfusions that have left me feeling completely symptom free. I am baffled, excited, and hopeful. The CDC even suggests dialysis and blood and exchange transfusions for severe Babesiosis patients. Blood work is still coming in, my LLMD is still working on me, but something has changed and healing has begun. I am excited to share my journey with you.
I am a big fan of taking one easy recipe and making leftovers into a completely different and equally easy new dish. As a mother of a 14 week old, returning to the work force, I don’t have time for fancy and I don’t have time for gross.
Earlier this week we had roast chicken and baked potatoes which is one of the EASIEST meals on earth to make! You need one roast pan, a chicken, some herbs, some oil,some butter and away you go. Find the recipe I use here.
When we are done with the chicken, I always remove the extra meat and make stock out of what is left, but as I started this process yesterday, I remembered an easy recipe I had saved weeks ago for Chicken Parmesan Soup. This recipe from Delish.com is as easy as it is delicious.
It was even better today than it was yesterday and we still have a TON of leftovers.
I am no angel but lately I have been asking myself a lot about the American parent dichotomy. This “perfect on the outside, shit on the inside” facade that we are all barely holding together.Where are my truthers?
Where are my unknown friends who have sat sobbing on the kitchen floor at midnight, with dinner burnt, your boobs hanging out, and your baby screaming?
Where are the women who forgot for 6 or more weeks what it was like to live with sex, sleep, and any rationale control of your hormones?
Where are the woman who love their children fiercely, but occasionally have thought “could I give you back for an hour?”
Where are these truthers hiding? I can’t hear you among the pleas of my peers for acceptance, approval.
14 weeks of parenting has afforded me very little time behind this maniacal wheel, but what I do know is that “you know nothing.”
Jon Snow be damned, I am giving it my best shot.
As I sit here, snowed in by Jonas, mounds of laundry piling up, struggling to breast feed and hoping the snow lasts till June so I never have to leave, I am reminded of the times I do get right. Half of them are by chance while the other half is hard work. Regardless, the triumph of these moments is all the greater because of the shitty odds of the battle going in, and the masterful f***-ups that somehow got you here.
Truth: I feel like I do more work than my husband.
Truth: he feels like he does more work than me.
Truth: we both are often working to what feels like our limits and sleep is not what it used to be.
Truth: today I own my my duality. I am a good parent. I am a bad parent.
P.s. Nap-time, you are a cock tease. I am beginning to loathe you as much as those perfect princesses with their Einstein infants, Martha Stewart magic, and white girl angst.
My Unchecked baggage,
I don’t understand it;
Not ever I can.
We all judge
Have you ever?
Last Friday night I got drunk. I didn’t mean to.
I meant to have 2 glasses of wine.
I forgot Zoloft interacted with alcohol.
More than 6 weeks after being prescribed a very low dose, I had finally started it, much to my husband’s relief.
Saturday morning as he recounted the night before (and a pump and dump incident 😂), I am not sure he would say the same thing.
Almost three weeks in, I have no blow ups. I am struggling at times still but I have been able to acknowledge my weakness and even live in the moment some. It has been a groundbreaking three weeks.
Here is to 2016.
(Read the first part of the birth story here)
*this post contains graphic information and is not for the faint of heart.
I had been warned that passing clots was not abnormal after labor. I was expecting it.
But this felt different.
Sam can you call the midwife and tell her I just passed some substantial clots? I asked.
I am feeling a little light headed.
Sam checked in with her. I had delivered our healthy 6lb 2 oz baby girl about 4 hours earlier and the midwife had left our home about 30 min before.
She’s in Elkins; do you want her to come back? he asks
I am not feeling quiet as hot as I had a few minutes earlier. I was fine. My heart wasn’t racing quiet like it had been. I was just nervous.
No, tell her I am doing better and just going to crawl back in bed, drink fluids and rest. I reply.
We enjoy the next 20 min as we wait in anticipation for the rest of our family, who are on their way, to join us! It was a gorgeous day. Warm and balmy, it was like summer but in the middle of October. Suddenly, I was hot all over. My head was swimming; I was sick to my stomach. Then I felt a loss of blood that felt similar to her shoulders exiting my body only a few hours earlier.
Something was wrong. That was too much blood.
I asked Sam to come around and help me to the bathroom, thankful I was laying on a chuck pad. I thought I could get up and walk with it underneath me. I quickly realized that wouldn’t work, and asked Sam to bring the trash can. Placing the plastic trash can between my legs, I tried to walk to the bathroom.
This is the last thing I remember.
RACHEL! RACHEL! RAAAACCHHHEEEELLLLL!!!!!
Sam is yelling in my face as I feel the cool breeze hitting my skin. I am slipping back and forth. He has my shoulders. He looks terrified. I have never seen him so scared.
What’s wrong? I manage to get out
YOU ARE! he screams in my face YOU ARE WHAT’S WRONG!!!
In this moment, somehow seeing Arden though she lay 25 feet away through a wall, I willed myself to consciousness. Sam and I spent a minute or so discussing options. It felt like an eternity. I wanted him to drive me to the hospital. He called the midwife and she suggested cutting the placenta and eating it, calling 911, etc. she was too far away at this point. He knew he couldn’t carry me and take care of our infant so he called his dad to have him come help carry me to the car.
Sam asked me if I could stand. I thought for sure I could. I was sliding but didn’t realize it was from the blood that was running out of the sides of the toilet, covered my feet, and stained the tile. Somehow, I made it to the bed, raised my feet and began massaging my uterus, hoping it would clamp down and the bleeding would stop. Suddenly my husband came in.
There is an ambulance, down the street. It was taking someone home. It was just sitting there. They are on their way.
Apparently at this point, Sam’s dad had arrived and was having a panic attack on our front porch, called Sam’s mom, and then my mom arrived. No one realized that Arden was there. She lay there perfectly calm in her swing bed, swaddled, awake, calmly taking it all in. At this point, the EMTs come into our bedroom. They have a stretcher and are trying to get it in the door. It won’t open all the way because of a thin black dresser behind the door. I think “oh god…of all the things…why is my lingerie dresser behind the door…they are going to move it. they are going to see. what if one of my students is working today.”
Thankfully they got it in the door without moving the little black dresser, but my one thought was quickly replaced with sheer wonder at how these two men were going to get me and this gurney out of the house and down the stairs. It seemed an impossible task! I completely judged a book by itscover while I lay there, slowly bleeding out. They were two of the most wonderful men I have ever met in my life. They are/were my angels. They helped to save me. But they were almost as wide as they were tall and the task of getting a 155lb woman out of a house and down the stairs seemed daunting, to say the least.
I remember each excruciating step because with each hit of gurney wheel, I felt myself loosing more blood. I felt bad for my husbands robe. I knew that was a goner at this point. Finally, in the back of the ambulance, they radio the local hospital to check and see if they have blood (they did) and they begin the short trek to the ER.
At some point, it was decided that my mom would go with me to the hospital and that Sam and his parents would stay at our home with Arden while Sam checked in with the midwife who was frantically calling. When we got into the ED, the doctor immediately began to question why the baby wasn’t there. He wanted to see the baby. For some reason I got very scared and was worried they would try to take Arden away from us. They take some labs ( I don’t remember this) and my vitals.
My blood pressure was almost 200. My WBC was 41. Something was wrong. I offered the answer, lyme, for the elevated WBC and the ED doctor stated that he knew all about Lyme and that wasn’t it.
The next two hours I remember very little about. Apparently they let my husband bring Arden there so I could nurse her. When they arrived no one was massaging my uterus. My mother-in-law asked for pitocin and they stated they “didn’t know what it was.” The only persons of true help with the EMT personnel who took exceptional care of me and checked on me, got a zofran script to help stop the vomiting (which was increasing the bleeding).
During this time, my husband was talking to the midwife who had turned around and gone to the hospital closest to us with a labor and delivery surgeon and prepped them of my case. The ED I was at was notified of this and then the mystery begins. I was told the ED doctor and the surgeon on call got into an argument and my bed was cancelled. Regardless, I laid in an ED for almost 2 hours, bleeding, with almost no care while two ego maniacs battled something out. Before being wheeled out, the doctor made a point to come in and tell me what an idiot I was for having a home-birth before hitting on my mom and strolling cocksure out of the room.
This was my first time in an ambulance. I really didn’t want to take one because I wasn’t sure if insurance would cover it or not. Turns out, I didn’t have a choice. I had lost three-fifths of my blood volume.
As we wound around the curvy roads of West Virginia, the nausea came back with a vengeance and the vomiting began. Not even Zofran was helping now. Things really became a blur. I remember little but that sunset and those firey orange trees. Those two things I remember, as we sped up I-79.
I remember very clearly how bright the room and how many people there were. I thought surely all these people aren’t here for me. it is like goddamn stadium lighting in here. i have never had so many people looking at my vagina. oh my god those lights are so bright. A man in blue scrubs and a face masks talks to me about when I last ate and drank. I realize it has something to do with intubation and asphyxation. He seems surprised. Next I think I am telling people the story of story of the recent hostage situation at the school at which I taught.
You lost three-fifths of your blood volume so we are going to be starting some transfusions.
damn those lights were bright.
The rest of this is pieced together based on what I have been told.
It is now almost 8 hours since I have delivered my daughter and they take me into surgery. Apparently there was some sort of complication with the placenta and the uterus. I had some blood clotting issues to say the least. My labs, however, were what was terrifying.
I had HELLP. It was a bad.
An hour or so later, out of surgery, I was back in the room with my husband and a couple other family members (maybe sister and mom or mother in law).
All of the sudden, I can’t breathe. I am crashing. I can’t breathe. I am trying to tell the nurses, the doctors, someone. There 9 goddamn people standing around my bed.
I can’t breathe why can’t you hear me! Help me!
Apparently, I was getting some of it out as I terrified my waiting husband and family. I was in bad shape.
I woke up the next morning with 5 IV ports in me, monitors everywhere. My skin was literally black from all the bruises where I had been poked, drawn, and transfused. I was a mess. Everything was blury and bowing towards the middle. My husband looked terrible. I knew something must have happened.
I sat up and tried to hold my perfect little 6lb daughter, but I couldn’t. Something didn’t feel right. I called the nurse and asked if it could be anesthesia.
Next thing I knew, two guys showed up to take me to CT scan to check on my concussion. Going down the hallway, I saw my dad talking to someone, but didn’t know who. (It was my best friend) When I returned to the room, I couldn’t sit up. Everything was dark. Something was wrong.
Next thing I knew, I was paralyzed. I started vomiting. I was on my back. I was terrified. I couldn’t move.
At this point, my sister who is an ICU nurse, jumped up, turned on the suction machine and began suctioning me. My mom called the nurse while they tried to turn me on my side.
Over the next hour, my heart began to slow, I couldn’t catch a breath. I heard someone talking about magnesium toxicity and what it would do to the body.
That! That’s it!!! My muscles can’t move. I can’t move them! Stop the magnesium! my brain is trying to yell
An hour and a half hour later, thanks to an amazingly quick thinking nurse, I was still paralyzed but quickly coming round once she turned off the magnesium drip. I had become toxic as result of my liver not working and the magnesium had slowly paralyzed my muscles.
It has been 28 hours since I had given birth to my daughter. Just 24 since the hemorrhage began.
In all of this, the hospital apparently tried to force my husband to take our daughter to the ER. He was terrified as he watched me quickly go from bad to worse once I was admitted and told them so. After some time, his family and mine talked him into admitting her. My sister and brother-in-law, who thankfully worked in the children’s hospital, worked with the charge nurse to have her directly admitted so she wasn’t exposed to anything in the ER.
She was perfect. She scored a 10 on her APGAR (a 9 after birth). I was terrified of being treated like an imbecile for how our birth occurred but our midwife worked with the hospital to show the care we took for protocol, pre-natal care, testing, etc. and we were treated with EXTREME respect.
Five days later, we went home after the first snow the season, a family of three together, barely, but forever.
Picture from bruising 10 days after leaving the hospital.
After giving birth to my daughter, I experienced a hemorrhage that, unfortunately, has left my milk supply a little on the low side.